Archive for February, 2007

Feb 09 2007

Palliative care is no room service

I keep on getting asked: don’t you have palliative care to help you out? As when you have palliative care, all should be smooth and easy…

Oh yes we do have palliative care and oh yes we really need all the help we can get as this metastatic liver cancer is really sucking the energy out of father and out of his care givers and care takers.

No room service

So the palliative nurse comes normally at 20.00h, today she jolly well comes at 19.00h. Why I ask? Well, because today your father is the only one that needs my treatments, so I come early.

Great, but as you know the routine is: we start eating with father around 18.00h so father will be finished at 19.30h (yes, for those who never saw a terminal liver cancer…) and we have half an hour extra time in case something should not go according to plan.

Can you tell a not much eating cancer patient to stop eating because the palliative care nurse wants to tuck him in 1 hour earlier, so she can spend the evening in the arms of her hubby? (she lives 5 minutes walk away from fathers’ house for crying out loud!)

Yes we have palliative care, but:

  • they work for the money,
  • they are not charity,
  • they have their own life and
  • they have their own time-schedule,

Therefore palliative care is far different than room service and unfortunately: father has no schedule!

No responses yet

Feb 06 2007

Palliative Care

Mom is caregiver to help father with his metastatic liver cancer.

Sounds great, yet mom is 75 years old yet 20 years in spirits. But her body is feeling the fatigue so hard, that now her back is in tremendous pain.

Tramadol

Mom takes a painkiller listed in my Top 10 pain killers. For those who remember that posts: Tramadol is fathers’ "Cancer pain management stage 2: tramadol"

So mom is constipated and from no painkiller to Tramadol: mom sleeps a lot.

Luckily the other children are around, yet with all the hospice and palliative care we asked for, it still is kind of killing mom.

As if fathers metastatic liver cancer is not bad enough on its own :-(

3 responses so far

Feb 02 2007

Spreading metastatic liver cancer

Or like father says: “if politicians would allocate as much money as fast as my cancer is spreading in my liver, this world would be a better place for all of us!”

Metastatic liver cancer top 2000

Metastatic Liver Cancer is proudly accepted to spread our cancer message through 2000 Bloggers, thanks to Tino who deserves a big hug!

Thanks to Bloggers 2000 we also got in touch with a person having chronic pains and sees the joke in it, just like father steps through life. We will post more of this soonest, as pain and pain medication is also a big part in cancer treatment, or the lack of cancer cures…

No responses yet

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