Archive for March, 2007

Mar 19 2007

Colon Cancer

Father is no more fighting his metastatic liver cancer, but others are. Read the cancer story below (sent to us last month, but we were too occupied in our own cancer fight).

The similarities with fathers’ metastatic liver cancer are clear: you want to live your life "as normal as possible", although your clock is ticking louder than with other people. Louder doesn’t mean faster, it means you are more aware that your days are numbered.

Yet like father said: I wouldn’t have done anything different, especially not when it came to choosing my wife :-)

The difference with father and the cancer story below is that father was old: kind of too old to get cancer treatment and unfortunately: they never found the primary cancer.

Give your hugs and prays to KA’s family
(KA’s hubby has colon cancer + metastatic liver cancer)

Read KA’s cancer story… :

Colon Cancer

My husband was diagnosed with metastatic colon cancer to the liver almost 2 years ago. In the colon was only one small tumor, in the liver, 3 inoperable softball sized tumors, and numerous small ones. We went to the doctor thinking he needed his gall bladder out. Quite a shocking surprise to find out otherwise.

Cancer treatment

Overall, he’s done remarkably well until the last 2 weeks. Still worked full time, had energy to play with our 2 year old daughter (he’s 37). We visited Paris and took and Alaskan cruise in July of 06. We even did some moderate hiking at the time.

Systemic chemotherapy (the FOLFIRI regimen, plus Erbitux and Avastin, followed by FOLFOX) initially shrunk the larger tumors, and had tolerable side effects (though the skin rash from the Erbitux was remarkable!) But since autumn, his cancer marker (CEA) has been steadily increasing, and he has been slowly, slowly become more symptomatic, especially since the new year. His last scans at the beginning of Feb. showed significant re-growth and new growth, and we have been looking into liver directed therapy treatments, since we’ve failed systemic chemotherapy now.

The last two weeks his pain level (mainly abdomen and back) has increased from taking about 30 mg of Oxcodone over 24 hours to about 180 mg–phew. That seems like a lot, but I’m sure it will keep increasing. His abdomen has become notable distended (liver
protruding), and appetite diminished significantly. The last 3 days he’s been complaining of mild nausea. And fatigue has really hit in a new way. His labs have worsened by a factor of about 3 in the last 1 week, and we found out today, that he may now be disqualified from the treatments we had been hoping for (liver directed).

Cancer story

Even in the last 2 weeks he has still managed to work more than half time, though he comes home exhausted. We need to address this, since I don’t want him spending his “best time” at work, and not with his family. He knows that, but wants to get his projects to a transferable point to his colleague. And he is worse this week than last, worse today than 3-4 days ago.

Through this, we have clung to God, each other, our families, and our church family. We have been SO loved and supported with hundreds of people praying for us regularly. We’ve had babysitting, meals, and lots of lawn mowing. We are STILL praying for a miracle, though we don’t know if that is God’s plan in this trial. And we remind ourselves ALL THE TIME, that our Heavenly Father loves us, knows our present and future, and will never remove his loving arms from around us. As I write this I have tears rolling down my cheeks.

We are terribly scared of what the future will bring. But Richard has surprised the doctors to this point (VERY unusual for cancer so advanced not to have spread elsewhere yet, that we know of). And we continue to walk through this one day at a time, being grateful and joyful for our for many blessings. We also have constant joy from our daughter, who is at a delightful age, and has a great imagination that she shares with us.

I don’t know how we’ll be doing a week or a month from now, or if I’ll have a chance to write again. But reading of your dad’s journey was helpful for me tonight. You have been prayed for, too.

Please leave your hugs and prayers in a comment

Before leaving a comment, please register first. (this is because the medicine spamming on this blog became worse than a cancer).

Like KA says: I don’t know how I will be doing a week or a month for now, or if I will have the chance to write again… We know way too well what this sentence expresses, and the feeling of just not being able to help KA makes my eyes in tears as well…

Leave your comments in case KA returns. If KA doesn’t return, you can help her by spreading the word that there are too many cancer patients.

Cancer can only be cured if we start being aware that cancer is around big time!

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Mar 14 2007

Alprazolam xanax

Important for those palliative care takers of their own husband or wife:

more pain ahead when your loved one is gone

Antidepressant medication

Mom, who was fathers’ palliative care taker number 1, just got a prescription of alprazolam xanax. This is basically an antidepressant medication. Or like one of the palliative nurses said today:

Yes, your mom will shed lots and lots of tears over father, but you need to make sure that her day is more than just sitting there and sobbing away.

What we did already to ease the tears:

  • painkillers (moms’ body "suddenly" is in big pain after the metastatic liver cancer stopped fathers’ life
  • family support : mom seems to cry less when she is with somebody (mom cries the most in bed)
  • palliative support : yes, the palliative nurses still drop by
  • take some work out of moms’ hands (yet mom started complaining that she can do things, which is exactly what we want: mom has to do something in stead of having tears all day)
  • taking away all reasons why mom should keep at home
  • now the antidepressant medication: Alprazolam from xanax (just a tiny dose the doctor says…, this doctor is always very careful when prescribing medication, we love him for that)

Like we said: the tears will flow, yet they cannot flow 24 hours a day…

No responses yet

Mar 12 2007

Tired and sleepy

Remember how fathers’ metastatic liver cancer was asking so much energy from father that he could sleep more than 20 hours a day (see fathers’ quote: tired and sleepy)?

Now the same thing happens with mom: fathers’ number 1 cancer care taker. This week she has been in bed for almost all the week. The relation with the palliative care nurses is so good (they are all so sweet and devoted!!!), that one nurse dropped by to give mom a shower. And for all people out there: a shower does give some new energy!

Just to say that taking care of a sick person sucks out your energy, although you won’t admit it… Sooner or later your body will react. Moms’ body is in pain due "all the wrong movements" she made when taking care of father (lifting him up, going for a walk…), yet now she allows herself to feel the pain.

On top of that the pain of father no more being there for her at all…

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